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Experiences and perceptions of mothers with cystic fibrosis patients: a care perspective
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Keywords

Nursing
Family
Cystic fibrosis

How to Cite

Experiences and perceptions of mothers with cystic fibrosis patients: a care perspective. (2020). Revista Eletrônica Acervo Científico, 11, e3579. https://doi.org/10.25248/reac.e3579.2020

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Abstract

This article sought to identify the feelings involved in family members during health care for patients with cystic fibrosis. Cystic Fibrosis (CF) is a genetic disease described in 1930 as a childhood disease with low life expectancy. Despite advances in diagnosis and treatment, CF still has numerous associated difficulties, ranging from access to health services to multisystemic reactions. It was a qualitative-descriptive study under the bibliographic review method developed using the integrative literature review method. Mothers of CF patients experience greater stress and worse adaptation than mothers of healthy children or the general population. A recent meta-analysis showed that mothers of children with chronic illnesses had a significantly higher prevalence of Posttraumatic Stress Disorder than fathers. Nursing interventions aimed at following the adolescent throughout the therapeutic process need to prioritize parents / family significantly, considering that care is holistic and based on the subjectivity of the individual.

PDF (Portuguese (Brazil))