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Communicating the suspicion and opening the brain death protocol: exploratory study on family perceptions and preferences
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Keywords

brain death
Communication
Family
Perception
Preference

How to Cite

Communicating the suspicion and opening the brain death protocol: exploratory study on family perceptions and preferences. (2023). Electronic Journal Collection Health, 23(4), e12696. https://doi.org/10.25248/reas.e12696.2023

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Abstract

Objective: To describe perceptions and preferences of family members of adult patients in the Intensive Care Unit (ICU) regarding communication of suspicion and opening of the brain death (BD) protocol. Method: Field study, exploratory, descriptive, observational, cross-sectional, quantitative and qualitative, using the logbook instruments, checklist and specific questionnaire. Five family members of patients with suspected BD in the ICU of a tertiary public hospital in the Federal District participated. Descriptive analysis of the communication routine about BD and the objective and content responses for the discursive ones was carried out. Results: Preferences and perceptions of bad news about suspicion and opening of an BD protocol were convergent. Families' predominant preferences: receive the news personally, with attention, eye contact, honesty and respect for the level of understanding, space to express understanding, with pauses and availability to clarify doubts. Conclusion: The compatibility between perceptions and preferences indicates that the communication routine in the study scenario has contemplated the families' preferences. The communication of suspicion and opening of the BD protocol is complex, serial and difficult to understand, with an emotional reaction of “shock”. It is recommended an interdisciplinary approach to families, use of bad news communication protocols and knowledge about family preferences.

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