Keywords
Diabetes Mellitus
Personal Autonomy
Self-Care
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Abstract
Objective: To analyze the talk-in-interaction of individuals living with diabetes regarding questions about autonomy and self-care. Methods: This was a qualitative study with educational group sessions using a problematizing methodology with nine participants. Results: Five categories emerged: autonomy and self-care; food; diabetes complications; pharmacological treatment; and lifestyle habits. The results presented herein refer to the autonomy and self-care category. There was difficulty in adapting the guidelines given by the health team to the reality of individuals in their biopsychosocial context. A lack of access to health services and social and family support were also observed. Conclusion: The analysis of the participants’ perceptions revealed difficulties in diabetes treatment related to each individual’s daily life and access to treatment. Analyzing the demands and difficulties of individuals with diabetes, within their various realities, can help in building bridges between knowledge about the disease and changes in attitude toward its treatment, providing autonomy and self-care.
References
AMERICAN ASSOCIATION OF DIABETES EDUCATORS. AADE guidelines for the practice of diabetes self-management education and training (DSME/T). Diabetes Educator. 2009; 35 (Suppl. 3).
BAKER DW, et al. Development of a brief test to measure functional health literacy. Patient Education and Counseling, 1999; 38: 33-42.
BARDIN L. Análise de conteúdo. Lisboa: Edições 70, 1977.
BRASIL. Gabinete do ministro. Portaria n°2.583. Define elenco de medicamentos e insumos disponibilizados pelo Sistema Único de Saúde, nos termos da Lei no 11.347, de 2006, aos usuários portadores de diabetes mellitus [internet]. Brasíli. Avaible from: https://bvsms.saude.gov.br/bvs/saudelegis/gm/2007/prt2583_10_10_2007.html. . 2007.
BRASIL. Secretaria de vigilância em saúde. Departamento de análise em saúde e vigilância de doenças não transmissíveis. Vigitel Brasil 2021: vigilância de fatores de risco e proteção para doenças crônicas por inquérito telefônico: estimativas sobre frequência e distribuição sociodemográfica de fatores de risco e proteção para doenças crônicas nas capitais dos 26 estados brasileiros e no Distrito Federal em 2021– Brasília: Ministério da Saúde, 2021. [s.l: s.n.]. Disponível em: www.saude.gov.br/svs.
BRAZILIAN DIABETES SOCIETY, Guidelines of the Brazilian Diabetes Society 2019–2020. SBD, 2019. Disponível em: http://observatorio.fm.usp.br/handle/OPI/21271. Acessado em:11/08/2022
BROWN SA, et al. Culturally Tailored Diabetes Prevention in the Workplace: Focus Group Interviews with Hispanic Employees. The Diabetes Educator, 2015: 41(2): 175–83.
CHAN CKY, et al. Social support and self-care outcomes in adults with diabetes: The mediating effects of self-efficacy and diabetes distress. Results of the second diabetes MILES – Australia (MILES-2) study. Diabetes Res Clin Pract, 2020; 166: 108314.
CYRINO AP, et al. Education for type 2 diabetes mellitus self-care: from compliance to empowerment. Interface-Comunic, 2009; 13(30): 93-106
DA SILVA JVM, et al. Hypertension and Diabetes Mellitus Program evaluation on user’s view. Rev Bras Enferm. 2015; 68(4): 541-7, 626-32.
FREIRE P. Pedagogia da autonomia: saberes necessários à prática educativa. 25 ed. São Paulo: Paz e Terra, 2002.
HOUSKA A e LOUČKA M. Patients’ Autonomy at the End of Life: A Critical Review. Journal of Pain and Symptom Management Elsevier Inc, 2019; 57(4):835-845.
INSTITUTO BRASILEIRO DE GEOGRAFIA E ESTATÍSTICA (IBGE). Projeções e estimativas da população do Brasil e das Unidades da Federação. 2021. International Diabetes Federation (IDF), IDF Diabetes Atlas, 10º ed, 2021.
LE C, et al. Socioeconomic disparities in type 2 diabetes mellitus prevalence and self-management behaviors in rural southwest China. Diabetes Res Clin Pract. 2016; 121: 9-16.
MARAGNO CAD, et al. Teste de letramento em saúde em português para adultos. Rev bras epidemiol, 2019; 22: e190025.
MARINHO FS, et al. Treatment adherence and its associated factors in patients with type 2 diabetes: Results from the Rio de Janeiro type 2 diabetes cohort study. J Diabetes Res. 2018 27; 2018:8970196.
MARINHO NBP, et al. Evaluation of the satisfaction of users of a service specialized in diabetes mellitus. Rev Bras Enferm. 2018;71(suppl 1):599-606.
MENDES F, et al. A satisfação dos utentes com os cuidados de saúde primários. Revista de Enfermagem Referência. 2013;III(9):17-25
MIRANDA LSP, et al. Impact of an educational intervention in the management of individuals with uncontrolled type 2 diabetes mellitus using insulin therapy. Prim Care Diabetes, 2022;16(4):496-501.
PANDIT AU, et al. Disease-related distress, self-care and clinical outcomes among low-income patients with diabetes. Journal of Epidemiology and Community Health, 2014; 68(6): 557–564.
PARKER RM, et al. The Test of Functional Health Literacy in Adults: A New Instrument for Measuring Patients’ Literacy Skills. J G Intern Med, 1995; 10: 537-541.
POWERS MA, et al. Diabetes Self-management Education and Support in Adults with Type 2 Diabetes: A Consensus Report of the American Diabetes Association, the Association of Diabetes Care & Education Specialists, the Academy of Nutrition and Dietetics, the American Academy of Family Physicians, the American Academy of PAs, the American Association of Nurse Practitioners, and the American Pharmacists Association. Diabetes Care. 2020; 43(7): 1636–1649.
RIBEIRO CSA, et al. Factors correlated with poor glycemic control in patients with type 1 diabetes: result of a nationwide survey in Brazil. Diabetology & Metabolic Syndrome, 2015; 7(S1).
SANTOS LTM. Validação do teste de avaliação do letramento em saúde (TALES), um questionário brasileiro de avaliação de letramento em saúde. Tese de Doutorado (Doutorado em Saúde) – Faculdade de Medicina da Universidade Federal de Juiz de Fora, Juiz de Fora, 2017; 155p.
SILVA JA, et al. Diagnosis of diabetes mellitus and living with a chronic condition: Participatory study. BMC Public Health. 2018; 18: 699.
SOUZA JG, et al. Association between health literacy and glycemic control in elderly patients with type 2 diabetes and modifying effect of social support. Einstein, 2020; 18: eAO5572.
VERAS VS, et al. Perfil glicêmico de pessoas com diabetes mellitus em um programa de automonitorização da glicemia capilar no domicílio. Texto e Contexto Enfermagem, 2014; 23(3): 609–616.