Abstract
Objective: To analyze the quality of life of family caregivers of patients with schizophrenia, emphasizing the importance of studying this construct and its associated factors. Bibliographic: The difficulties faced by family caregivers of patients with schizophrenic disorder result in a negative impact on their quality of life. Therefore, studies on this theme become relevant. Several factors are associated with relatives' low quality of life. These factors include the patient's disorder characteristics and how severe their symptoms are, the sociodemographics and clinical variables, the caregivers’ burden, and the quality of the mental health support service. The caregiver’s role can affect relatives’ mental and physical health, as well as their social and economic life. The relationship between family members can also be affected. Final considerations: The quality of life of relatives taking care of patients with schizophrenic disorder constitutes an essential aspect of mental health services evaluation, seeking to have a positive impact on the quality of treatment and care being offered. In this context, the following article emphasizes the importance of studying this construct and its related factors.
References
BANDEIRA M e ANDRADE MCR (2019). Avaliação dos serviços de saúde mental: avaliação e diretrizes metodológicas. In CARVALHO-FREITAS MN, et al. (Orgs.), Instituições, Saúde e Sociedade: contribuições da psicologia. UEMG, 2019; 153–-178.
BANDEIRA M e GUIMARÃES VN. Qualidade de vida de familiares de pacientes com esquizofrenia: Escala S-CGQoL. Psicologia: Teoria e Prática, 2016; 18(3): 66–80.
BESSA FB, et al. Sobrecarga e sintomatologia depressiva em familiares cuidadores de pessoas dependentes de álcool e outras drogas. Revista Interinstitucional de Psicologia, 2020; 13(2): 1–19
BONADIMAM CSC, et al. A carga dos transtornos mentais e decorrentes do uso de substâncias psicoativas no Brasil: Estudo de Carga Global de Doenças, 1990 e 2015. Revista Brasileira de Epidemiologia, 2017; 20: 191-204.
CAQUEO-URÍZAR A C, et al. Quality of life in caregivers of patients with schizophrenia: a literature review. Health and Quality of Life Outcomes, 2009; 7: 1–5.
CAQUEO-URÍZAR A, et al. Cross-cultural adaptation and validation of the quality of life questionnaire for caregivers of patients with schizophrenia (S-CGQoL) in Latin America. L’encephale, 2021; 47(4): 291–298.
DIAS, P, et al. Bem-estar, qualidade de vida e esperança em cuidadores familiares de pessoas com esquizofrenia. Revista Portuguesa de Enfermagem de Saúde Mental, 2020; 23: 23–30.
ESTRADA-FERNANDEZ ME, et al. The impact of community care: burden and quality of life of the informal caregivers of patients with severe mental disorder. J of Comm Psychol, 2022; 50(1): 487–501.
FERNANDES S, et al. Qualidade de vida do cuidador familiar da pessoa com esquizofrenia. VI Encontro de Jovens Investigadores do Instituto Politécnico de Bragança, 2020.
GLOZMAN JM. Quality of Life of Caregivers. Neuropsychology Review, 2004; 14: 183–-196.
HSAIO CY, et al. Caregiver burden and health-related quality of life among primary famil caregivers of individuals with schizophrenia: a cross-sectional study. Quality of Life Research, 2020; 29: 2745–2757.
JORGE RC, et al. Psycological morbity in the main predictor of quality of life among caregivers of individuals in first-episode psycosis: Data from a year-long longitudinal study in Brazil. Brazilian Journal of Psychiatry, 2019; 41: 403–410.
KLUTHCOVSKY ACGC e TAKAYANAGU AMM. Qualidade de vida: aspectos conceituais. Revista Salus Guarapuara, 2007; 1(1): 13–15.
LACERA MB, et al. Sobrecarga y calidad de vida del cuidador de un paciente con esquizofrenia. Duazary, 2019; 16(2): 280–292.
LENG A, et al. Quality of life in caregivers of a family member with serious mental illness: Evidence from China. Archives of Psychiatric Nursing, 2019; 33(1): 23–29.
LIMA-RODRÍGUES JS, et al. Factors associated with quality of life in relatives of adults with serious mental illness: A systematic review. Community mental health journal, 2022; 58(7): 1361–1380.
LEMOS MEP, et al. Sobrecarga familiar de pessoas com transtorno mental: uma revisão integrativa Family burden of people with mental disorder: an integrative review. Brazilian Journal of Health Review, 2022; 5(2): 5599–5615.
LOPERA-VASQUEZ JP. Qualidade de vida relacionada à saúde: exclusão da subjetividade. Ciência. saúde coletiva, 2020; 25(2): 693–702
PEREIRA CR, et al. Avaliação da sobrecarga de familiares cuidadores de indivíduos com esquizofrenia. Revista de Enfermagem, 2020; (14):1–9.
PINTO S, et al. Comfort, well-being and quality of life: Discussion of the differences and similarities among the concepts. Porto Biomed J., 2017; 2(1):6–12.
RAMOS AC, et al. Convivência do familiar cuidador junto à pessoa com transtorno mental. Contextos Clínicos, 2019; 12(1): 283–302.
RIBÉ JM, et al. Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. International journal of psychiatry in clinical practice, 2018; 22(1): 25–33.
RICHIERI R, et al. The Schizophrenia Caregiver Quality of Life Questionnaire (S-CGQoL): development and validation of an instrument to measure quality of life of caregivers of individuals with schizophrenia. Schizophrenia Research, 2011; 126(1-3): 192–201.
RHEE GT e ROSENHECK RA. Does Improvement in Symptoms and Quality of Life in Chronic Schizophrenia Reduce Family Caregiver Burden? Psychiatry Res., 2019; 271: 402–404.
RUIDIAZ-GÓMEZ KS e CACANTE-CABALLERO JV. Desenvolvimento histórico do conceito de Qualidade de Vida: uma revisão da literatura. Revista Ciencia y Cuidado, 2021; 18(3): 86–99.
SEIDL EMF e ZANNON CMLDC. Qualidade de vida e saúde: aspectos conceituais e metodológicos. Cadernos de Saúde Pública, 2004; 20(2): 580–588.
SHIRAISHI N e REILLY J. Positive and negative impacts of schizophrenia on family caregivers: A systematic review and qualitative meta-summary. Social psychiatry and psychiatric epidemiology, 2019; 54: 277–290.
STANLEY S, et al. Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia. Journal Mental Health, 2017; 26(2):134–141.
THIN N. Quality of Life Issues in Development. The International Encyclopedia of Anthropology, 2018; 1–8.
TREICHEL CADS, et al. Transtornos psiquiátricos menores em familiares cuidadores de usuários de Centros de Atenção Psicossocial: prevalência e fatores associados. Ciência & Saúde Coletiva, 2020; 25: 461–472.
TRISTIANA RD, et al. Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia. Journal of Psychosocial Rehabilitation Mental Health, 2019; 6: 141–148.
WHO. World Mental Health Report. Geneva: 2022.
