Maternal experiences and lived realities after the diagnosis of Congenital Syphilis

Abstract

Objective: To highlight maternal experiences after the diagnosis of congenital syphilis and the difficulties faced during treatment, emphasizing the social and emotional barriers encountered. Methods: This study consisted of an integrative literature review conducted on the SciELO, Acervo+ Index Base, and Virtual Health Library (VHL) platforms, including articles published in Portuguese or Spanish between 2015 and 2025. The descriptors used were [congenital syphilis] AND [maternal experience OR care OR after diagnosis OR during treatment]. The guiding research question was: “What are the experiences, challenges, and emotional, behavioral, and social impacts experienced by mothers after the diagnosis of congenital syphilis?” Results: Mothers of children with syphilis experience feelings of fear, guilt, shame, and distress in response to their children’s diagnosis and treatment. Weaknesses were identified in communication with healthcare professionals, in the establishment of bonds during prenatal care, and in social support. Humanized care and educational actions proved to be essential in reducing emotional impacts and promoting adherence to treatment. Final considerations: Congenital syphilis remains a serious public health problem, reflecting shortcomings in prenatal care, communication, and the welcoming of pregnant women. There is a clear need for more humanized care practices, professional training, psychosocial support, and educational actions that encourage treatment adherence and promote better maternal and child health outcomes.