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Evaluation of the quality of life of the child and adolescent hemophilia patient
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Keywords

Hemophilia
Quality of life
Outcome assessment

How to Cite

Evaluation of the quality of life of the child and adolescent hemophilia patient. (2020). Electronic Journal Collection Health, 12(10), e4290. https://doi.org/10.25248/reas.e4290.2020

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Abstract

Objective: To evaluate the quality of life of child and adolescent hemophilia patient in a Hematology and Hemotherapy Center in the state of Piauí. Methods: This is a descriptive, cross-sectional study, with quantitative approach, with a sample of 11 patients, performed in a Center of Hematology and Hemotherapy in the state of Piauí, who answered the questionnaire Canadian Haemophilia Outcomes-Kids life Assessment Tool (CHO-KLAT). The application of the questionnaire occurred at a single time to child and adolescent hemophilia patients aged 7-17 years who signed the informed assent form. Results: The three issues with the highest self-reported values of patients were respectively: quality of treatment, satisfaction with oneself and habit of reporting the family when getting hurt; the three issues with the lowest values were: autonomy, ability to cope with anxiety/fear and relationship with the family and social fear. Conclusion: In general, the hemophilia patients reported feeling pleased with themselves and that the treatment offered has been satisfactory; however, there are still some challenges for improving the quality of life of these patients.

PDF (Portuguese (Brazil))