Abstract
Objective: To evaluate the quality of life of child and adolescent hemophilia patient in a Hematology and Hemotherapy Center in the state of Piauí. Methods: This is a descriptive, cross-sectional study, with quantitative approach, with a sample of 11 patients, performed in a Center of Hematology and Hemotherapy in the state of Piauí, who answered the questionnaire Canadian Haemophilia Outcomes-Kids life Assessment Tool (CHO-KLAT). The application of the questionnaire occurred at a single time to child and adolescent hemophilia patients aged 7-17 years who signed the informed assent form. Results: The three issues with the highest self-reported values of patients were respectively: quality of treatment, satisfaction with oneself and habit of reporting the family when getting hurt; the three issues with the lowest values were: autonomy, ability to cope with anxiety/fear and relationship with the family and social fear. Conclusion: In general, the hemophilia patients reported feeling pleased with themselves and that the treatment offered has been satisfactory; however, there are still some challenges for improving the quality of life of these patients.
