Google Académico | Citações: 16429 | índice h: 32 | índice i10: 482
Estrategias educativas para el reconocimiento precoz del trastorno del espectro autista: un enfoque centrado en padres y familiares
PDF (portugués (Brasil))

Palabras clave

Trastorno autista
Diagnóstico precoz
Educación en salud
Relaciones familiares

Cómo citar

Estrategias educativas para el reconocimiento precoz del trastorno del espectro autista: un enfoque centrado en padres y familiares. (2025). Revista Eletrônica Acervo Saúde, 25(11), e22153. https://doi.org/10.25248/reas.e22153.2025

Copyright © | Todos los derechos reservados.

La revista posee los derechos de autor exclusivos para la publicación de este artículo en los términos de la ley brasileña 9610/98.

Reproducción parcial
El uso de partes de los textos, figuras y cuestionario del artículo es libre, siendo obligatoria la citación de los autores y revista.

Reproducción total
Está expresamente prohibido y debe ser autorizado por la revista.

Resumen

Objetivo: Analizar las acciones educativas dirigidas a padres y familiares para la detección precoz de los signos del TEA, destacando las prácticas que favorecen la identificación, la concienciación comunitaria y la derivación adecuada al diagnóstico especializado. Métodos: Revisión integradora de la literatura, con búsquedas sistemáticas en las bases Lilacs, Medline (a través de BVS), SciELO, Portal Capes y Scopus. Se incluyeron 23 estudios publicados entre 2020 y 2024, seleccionados rigurosamente según el protocolo PRISMA. Resultados: Las intervenciones educativas aumentan significativamente la sensibilidad de los cuidadores y reducen el tiempo medio hasta el diagnóstico, especialmente cuando se asocian a instrumentos como el M-CHAT-R y a la formación continua de las familias. Las barreras estructurales, las limitaciones de acceso y las desigualdades socioculturales dificultan el diagnóstico precoz, especialmente en las poblaciones vulnerables. Consideraciones finales: Las estrategias intersectoriales que integran la capacitación parental, el uso de herramientas culturalmente validadas y el apoyo profesional continuo son esenciales para la detección temprana, eficaz y equitativa del TEA. Los protocolos nacionales deben considerar cuidadosamente los contextos socioculturales y valorar el protagonismo activo de la familia en el proceso de diagnóstico.

PDF (portugués (Brasil))

Referencias

BARANEK GT, et al. Early measurement of autism risk constructs in the general population: A new factor structure of the First Years Inventory (FYIv3.1) for ages 6–16 months. Autism Res. 2022;15(5):915-928.

BARBARO J, et al. A multistate trial of an early surveillance program for autism within general practices in Australia. Front Pediatr. 2021;9:640359.

BENT CA, BARBARO J, DISSANAYAKE C. Parents’ experiences of the service pathway to an autism diagnosis for their child: What predicts an early diagnosis in Australia? Res Dev Disabil. 2020;103:103689.

BUDISTEANU M, et al. Recognition of early warning signs and symptoms – the first steps on the road to Autism Spectrum Disorder diagnosis. Ann Ist Super Sanita. 2022;58(3):183-191.

CARMO MBB. Caminhar com as epistemologias do Sul: alternativa ao legado do colonialismo na formação em saúde. Currículo sem Fronteiras. 2022;22:e1967.

CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC). Data & Statistics on Autism Spectrum Disorder. 2025. Disponível em: https://www.cdc.gov/ncbddd/autism/data.html. Acesso em: 25 mai. 2025.

CHISTOL M, DANUBIANU M. Automated detection of autism spectrum disorder symptoms using text mining and machine learning for early diagnosis. Int J Adv Comput Sci Appl. 2024;15(2):610-617.

CRESSONI CB, et al. Sinais precoces do Transtorno do Espectro Autista (TEA): o papel do pediatra no diagnóstico precoce. J Med Biosci Res. 2025;2(1):1161-1175.

DAI Y, et al. Improving early detection, diagnosis and intervention for children with autism spectrum disorder: A cross-sectional survey in China. Res Dev Disabil. 2023;142:104616.

DE OLIVEIRA ARP, et al. Early detection of warning signs of autism in puericulture consultations by nurses. New Trends Qual Res. 2023;18:e893.

DE SOUSA MNA, et al. Trilhando o caminho do conhecimento: o método de revisão integrativa para análise e síntese da literatura científica. OLEL. 2023;21(10):18448-83.

DESIDERI L, et al. Information and communication technologies to support early screening of autism spectrum disorder: a systematic review. Children (Basel). 2021;8(2):117.

FEINBERG E, et al. Effect of family navigation on diagnostic ascertainment among children at risk for autism: a randomized clinical trial from DBPNet. JAMA Pediatr. 2021;175(3):243-250.

GULSRUD AC, et al. Comparative efficacy of an early intervention “parent and me” program for infants showing signs of autism: The Baby JASPER model. Infant Behav Dev. 2024;76:101952.

HORIUCHI S, et al. Caregivers’ awareness matters: call for a child-centred approach to early detection of autism spectrum disorder through well-child visits in Japan. Child Care Health Dev. 2023;49(6):985-994.

ISSAC A, et al. The global prevalence of autism spectrum disorder in children: a systematic review and meta-analysis. Osong Public Health Res Perspect. 2025;16(1):3-27.

JOANNA BRIGGS INSTITUTE (JBI). Supporting document for the Joanna Briggs Institute levels of evidence and grades of recommendation. Adelaide: JBI; 2014.

KOKAUA J, et al. Is parent education a factor in identifying autism/takiwātanga in an ethnic cohort of Pacific children in Aotearoa, New Zealand? Autism. 2024;28(7):1667-1676.

KUL M, et al. Sociodemographic and social barriers to early detection of autism. Turk J Pediatr. 2023;65(5):778-788.

LOCKE J, et al. Parent perceptions about communicating with providers regarding early autism concerns. Pediatrics. 2020;145:e20191895.

LORD C, et al. Autism spectrum disorder. Lancet. 2018;392(10146):508-520.

MAIA FJF, FARIAS MHV. Colonialidade do poder: a formação do eurocentrismo como padrão de poder mundial por meio da colonização da América. Interações (Campo Grande). 2020;21:577-596.

MARCO RL, et al. TEA e neuroplasticidade: identificação e intervenção precoce. Braz J Dev. 2021;7(11):104534-104552.

MENDES KDS, SILVEIRA RCP, GALVÃO CM. Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto Contexto Enferm. 2008;17(4):758-764.

MINAYO MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. 14ª ed. São Paulo: Hucitec; 2014.

NAYAK A, KHUNTIA R. Development and preliminary validation of Nayak Autism Screening Instrument (NASI). Asian J Psychiatr. 2023;89:103777.

ONOVBIONA H, et al. Exploring factors of diagnostic timing among Black autistic youth. J Autism Dev Disord. 2024.

PAGE MJ, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ. 2021;372:n71.

PASCO G, et al. Comparison of parent questionnaires, examiner-led assessment and parents’ concerns at 14 months of age as indicators of later diagnosis of autism. J Autism Dev Disord. 2021;51(3):804-813.

QUIJANO A. Colonialidade do poder, eurocentrismo e América Latina. In: LANDER E, org. A colonialidade do saber: eurocentrismo e ciências sociais. Perspectivas latino-americanas. Buenos Aires: CLACSO; 2005. p. 227-278.

SALGADO-CACHO JM, et al. Detection of early warning signs in autism spectrum disorders: a systematic review. Children (Basel). 2021;8(7):555.

SAMADI SA, et al. Developmental signs of autism spectrum disorder in Iranian pre-schoolers. J Pediatr Nurs. 2021;58:e69-e73.

SEGRE G, et al. Pediatrician and parental evaluation of child neurodevelopment at 2 years of age. BMC Pediatr. 2024;24(1):137.

SNIJDER MIJ, et al. Social Communication Program supported by E-health (SCOPE) for infants and toddlers at elevated likelihood of autism spectrum disorder: study design of a cluster randomized controlled trial. BMC Psychiatry. 2022;22(1):772.

SNIJDER MIJ, et al. Parental experiences with early identification and initial care for their child with autism: tailored improvement strategies. J Autism Dev Disord. 2022;52(8):3473-3485.

TAGAVI DM, et al. The implementation of the screening tool for autism in toddlers in Part C early intervention programs: an 18-month follow-up. Autism. 2023;27(1):173-187.

TANNER A, DOUNAVI K. Maximizing the potential for infants at-risk for autism spectrum disorder through a parent-mediated verbal behavior intervention. Eur J Behav Anal. 2020;21(2):271-291.

VANAKEN GJ, et al. The earlier, the better? An in-depth interview study on the ethics of early detection with parents of children at an elevated likelihood for autism. J Autism Dev Disord. 2024;54(11):4130-4144.

WHITTEMORE R, KNAFL K. The integrative review: updated methodology. J Adv Nurs. 2005;52(5):546-553.

ZHONG X, et al. Validation of the Chinese version of the autism spectrum knowledge scale general population version (ASKSG) with a parent sample. J Pediatr Nurs. 2024;78:e219-e226.