Cystic fibrosis in the pediatric hospital context

Abstract

Objective: To report on the experience of nursing students in the hospitalization of fibrocystic children in a pediatric clinic of a reference hospital in the Northern Region. Experience report: This is a descriptive study, based on the praxis of care during the Pediatric Nursing curricular activity, in September 2022, in a pediatric ward of a reference hospital for outpatient follow-up and hospitalization of patients with Cystic Fibrosis, with 23 beds, 4 wards with 5 beds each and 3 isolation rooms. Among these beds, there were children with Cystic Fibrosis. The clinical condition drew attention due to the specificities and complexity of the care, medication and multidisciplinary team, not only during hospitalization, but also during routine outpatient follow-up. Conclusion: The monitoring of hospitalization highlighted the importance of the multidisciplinary team in care, focusing on the quality of life of the child and their family, as well as knowledge about the disease cystic fibrosis and its care, with appropriate guidance for each situation of the binomial child and family, informing each necessary procedure during hospitalization, in which the child and guardian are out of the daily routine.