Palavras-chave
Cuidados Paliativos
Pacientes
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Resumo
Objetivo: Analisar os cuidados paliativos para pacientes com doença de Alzheimer em estágio avançado. Métodos: A revisão bibliográfica foi conduzida nas bases de dados PubMed e Portal Regional da Biblioteca Virtual em Saúde do Ministério da Saúde, utilizando os descritores "Alzheimer Disease", "PalliativeCare" e "Patients". Após aplicar critérios de inclusão e exclusão, foram selecionados 25 artigos que oferecem percepções sobre a importância desses cuidados. Resultados: Os resultados enfatizam a necessidade de uma abordagem centrada no paciente e colaboração interdisciplinar para garantir cuidados abrangentes e coordenados, promovendo conforto, dignidade e qualidade de vida. Políticas de saúde e práticas clínicas devem incluir medidas de apoio aos cuidadores para mitigar seu impacto na saúde mental e bem-estar. A comunicação aberta desde o início da doença é crucial para garantir que os pacientes recebam cuidados adequados às suas necessidades. Considerações Finais: Desafios como acesso limitado a serviços de cuidados paliativos e desenvolvimento de intervenções específicas para diferentes estágios da doença persistem, destacando a necessidade de compromisso contínuo com pesquisa, educação e colaboração interprofissional. Essas conclusões fornecem percepções cruciais para aprimorar a prática clínica, visando melhorar a qualidade de vida de pacientes com Alzheimer em estágio avançado e seus cuidadores.
Referências
ASHRAFIZADEH H, et al. Explaining Caregivers’ Perceptions of Palliative Care Unmet Needs in Iranian Alzheimer’s Patients: A Qualitative Study. Frontiers in Psychology, 2021, 12(4): 37–45.
ASHRAFIZADEH H, et al. Needs Assessment and the Identification of Palliative Care Dimensions of the Essential Service Package for the Elderly with Alzheimer’s Disease: A Mixed Exploratory Study. Florence Nightingale Journal of Nursing, 2023, 31(3): 160–172.
BOSISIO F, et al. Implementing Advance Care Planning in Early Dementia care: Results and Insights from a Pilot Interventional Trial. BMC Geriatrics, 2021, 21(1): 430.
CHOVER-SIERRA E, et al. Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia. Healthcare, 2022, 10(4): 656.
COLE C, et al. Care challenges of home health patients living with dementia: a pathway forward with palliative care. BMC Palliative Care, 2023, 22(1): 159–168.
CULBERSON JW, et al. Urgent needs of caregiving in ageing populations with Alzheimer’s disease and other chronic conditions: Support our loved ones. Ageing Res Rev, 2023, 9(1): 102001–102001.
DASSEL K, et al. Development of a Dementia-Focused End-of-Life Planning Tool: The LEAD Guide (Life-Planning in Early Alzheimer’s and Dementia). Innovation in Aging, 2019, 3(3): 19–26.
ERNECOFF NC, et al. Quality of Life with Late-Stage Dementia: Exploring Opportunities to Intervene. Journal of the American Geriatrics Society, 2019, 67(6): 1189–1196.
FINK RM, et al. Reality of Family Caregiving for Hispanics With Alzheimer’s Disease and Related Dementias: A Qualitative Analysis. J Palliat Med, 2023, 7(2): 1618–1626.
GIANATTASIO KZ, et al. Evaluation of Federal Policy Changes to the Hospice Benefit and Use of Hospice for Persons With ADRD. JAMA Health Forum, 2022, 3(5): e220900.
LAKIN JR, et al. Study protocol for Video Images about Decisions to Improve Ethical Outcomes with Palliative Care Educators (VIDEO-PCE): a pragmatic stepped wedge cluster randomised trial of older patients admitted to the hospital. BMJ Open, 2022, 12(7): e065236–e065236.
LEYHE T, et al. Conference report: dementia research and care and its impact in Switzerland. Swiss Medical Weekly, 2020, 13(49): 34–39.
LEVIN OS, et al. Palliative care in Parkinson’s disease and neurodegenerative diseases. Zhurnal Nevrologii I Psikhiatrii Imeni S.S. Korsakova, 2020, 120(10): 5–15.
MENDLIK MT, et al. Top Ten Tips Palliative Care Clinicians Should Know About Caring for Patients with Neurologic Illnesses. J Palliat Med, 2019, 5(3): 193–198.
MULLINS MA, et al. Access to primary care and cognitive impairment: results from a national community study of aging Americans. BMC Geriatrics, 2021, 21(1): 7–14.
PEREIRA MJ, et al. Integrated palliative homecare in advanced dementia: reduced healthcare utilisation and costs. BMJ Support Palliat Care, 2023, 7(1): 77–85.
POSSIN KL, et al. Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use. JAMA Internal Medicine, 2019, 179(12): 1658.
TERESI JÁ, et al. Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer’s Disease and Related Dementias. J Fam Nurs, 2019, 11(2): 557–589.
TOLES M, et al. Palliative care for persons with late-stage Alzheimer’s and related dementias and their caregivers: protocol for a randomized clinical trial. Trials, 2023, 24(1): 86–92.
TOLES M, ULMER C, LEEMAN J. Health Trajectories of Skilled Nursing Facility Patients With Alzheimer’s Disease and Related Dementias: Evidence for Practicing Nurses. J Gerontol Nurs, 2023, 15(6): 34–41.
WATT AD, et al. Ethical Issues in the Treatment of Late-Stage Alzheimer’s Disease. J Alzheimers Dis, 2019, 22(5): 1311–1316.
WEISBROD N. Primary Palliative Care in Dementia. Neurotherapeutics, 2022, 20(3): 18–22.
WOOD M, WALSHE C, MCCULLAGH A. What are the digitally enabled psychosocial interventions delivered by trained practitioners being offered to adults with life-shortening illnesses and palliative care needs and their informal and professional caregivers?. Palliat Support Care, 2023, 12(5): 727–740.
YUYAMA EK, et al. Palliative Care in Advanced Alzheimer’s Disease Dementia: Evaluation of the Answers Given by Caregivers and Physicians to the Accuracy of Surprise Question, as a Prognostic Tool. American Journal of Hospice and Palliative Medicine, 2022, 40(6): 624–632.
YUYAMA EK, et al. Palliative Care in Advanced Alzheimer’s Disease Dementia: Evaluation of the Answers Given by Caregivers and Physicians to the Accuracy of Surprise Question, as a Prognostic Tool. Am J Hosp Palliat Care, 2023, 23(7): 624–632.