Trajectory of professionals with children and adolescents who have special health needs
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Abstract
Objective: To know the trajectory of professionals who work at the clinic and at the school of the Association of Parents and Friends of the Handicapped and the construction of bonds for the care of children and adolescents with special health needs. Methods: Descriptive study, with a qualitative approach, with 21 health and education professionals who work in the association. Semi-structured interviews, thematic content analysis and the construction of conceptual maps were used. Results: The trajectory of professionals is marked by different feelings that start from the fear of working with children and adolescents with special needs, to affective bonds, conviviality and bonding. Conclusion: The professionals report that they seek inclusion, socialization and acquisition of skills for these children and adolescents, based on the specific knowledge to work with this population, and also on the affective and trusting bonds, which have an impact on the formation of the bond, on the care and on the development of potentialities, however, the importance of the Association of Parents and Friends of the Mentally Handicapped and of professionals in the care of each child and adolescent with special needs was observed, so it is suggested further studies aimed at professionals since the demands of this public are unique to both care and special education.
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References
2. ANDRADE AM, et al. Recursos educacionais para capacitação de profissionais que cuidam de crianças com deficiências: um overview. Tempus, Actas de Saúde Colet. 2020; 14(2): 169-189.
3. BEZERRA GF e FURTADO AC. Formação de profissionais especializados para educação de excepcionais: proposições e representações a partir do impresso periódico Mensagem da APAE (1963-1973). Hist. Educ. 2020; 24:e88388.
4. BEZERRA GF. Associação de Pais e Amigos dos Excepcionais (APAE): delineamento de uma gênese histórica. Cadernos de Pesquisa. 2020; 27(1): 97-123.
5. BRENNER M, et al. Enhancing care of children with complex healthcare needs: an improvement project in a community health organisation in Ireland. BMJ Open Qual. 2021; 10(1):e001025.
6. DIÁRIO OFICIAL DA UNIÃO. Presidência da República. Dispõe sobre o Estatuto da Criança e do Adolescente e dá outras providências. Lei nº 8.069, de 13 de julho de 1990. Brasília – DF: 1990.
7. FAVARO LC, et al. Percepção do enfermeiro sobre assistência às crianças com necessidades especiais de saúde na atenção primária. Reme: Revista Mineira de Enfermagem. 2020; 24.
8. FERNANDES ADSA, et al. Desafios cotidianos e possibilidades de cuidado com crianças e adolescentes com Transtorno do Espectro Autista (TEA) frente à COVID-19. Cadernos Brasileiros de Terapia Ocupacional. 2021; 29: e2121.
9. FRANCO MLPB. Análise de conteúdo. 2 ed. Brasília: Liber; 2020.
10. GALL VN, et al. Improving Care for Families and Children with Neurodevelopmental Disorders and Co-occurring Chronic Health Conditions Using a Care Coordination Intervention. Journal of Developmental & Behavirol Pediatrics. 2022; 43(8): 444-453.
11. LIMA PMVM, et al. Assistência profissional no cuidado domiciliar de crianças e adolescentes com necessidades especiais de saúde: revisão integrativa. Aquichan, 2022; 22(1).
12. MATTSON G e KUO DZ. Psychosocial factors in children and youth with special health care needs and their families. Pediatrics. 2019; 143(1): e20183171.
13. MATTSON G, et al. Committee on psychosocial aspects of child and family health, aap council on children with disabilities. Psychosocial Factors in Children and Youth With Special Health Care Needs and Their Families. Pediatrics. 2019; 143(1):e20183171.
14. MORTON B, et al. Coordination for Children with Special Healthcare Needs Anticipating Transition: A Program Evaluation. Journal of Pediatric Nursing. 2021; 61: 7-14.
15. OLIVEIRA ESF, et al. Pesquisa qualitativa em saúde: uma abordagem reflexiva. Revista Brasileira de Enfermagem. 2019; 72: 830-831.
16. OLIVEIRA JP, et al. Nursing care for children/adolescents with special health needs hospitalized in pediatric unit. Res., Soc. Dev. 2021;10(3):e15010313054.
17. PIAGET J e FRAISSE, P. Tratado De Psicologia Experimental: História E Método. v.1. Trad. Agnes Cretella. Rio De Janeiro: Forense; 1969.
18. RENNICK JE, et al. Exploring the experiences of parente caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: na interpretive descriptive study. BMC Pediatrics. 2019; 19(279).
19. SILVA MC e HAAS C. A formação continuada docente a serviço de formar-se para os processos escolares inclusivos. Revista Práxis Educacional. 2019; 15(36):465-93.
20. SILVA GS, et al. Avaliação da assistência à saúde da criança na Atenção Primária no Brasil: revisão sistemática de métodos e resultados. Ciência & Saúde Coletiva, 2020; 25(8).
21. SILVEIRA A e NEVES ET. Cotidiano de cuidado de adolescentes com necessidades especiais de atenção à saúde. Acta Paul Enferm. 2019; 32(3):327-333.
22. SILVEIRA A, et al. Crianças e adolescentes com necessidades especiais de saúde: desafios profissionais na pandemia. Revista Espaço, Ciência e Saúde. 2021; 9(1):15-26.
23. SILVEIRA A, et al. Crianças e adolescentes com necessidades especiais: desafios e motivações para cuidados de saúde e educação. Revista Disciplinarum Scientia. 2020; 21(2):141-52.
24. SILVEIRA A, et al. Crianças e adolescentes com necessidades especiais de saúde: cuidado e empatia de enfermagem. Rev. Varia sci. 2020; 6(2): 112-120.
25. SILVEIRA A, et al. Adolescentes com necessidades especiais de saúde: Desafios da inclusão escolar no discurso de familiares/cuidadores. Rev. Pesqui.(Univ. Fed. Estado Rio J., Online), 2020; 12: 1290-1295.
26. VAZ EMC, et al. Challenges in Primary Care Regarding Children and Adolescents With Chronic Conditions in Brazil. Qualitative Health Research. 2019;29(13):1978-1987.